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Showing posts with the label diagnosis

Six months in... Autism not Autistic

We are nearly 6 months into our sons diagnosis with autism and I do feel we are still on the steep end of the learning wedge. I feel there is so much I don't yet know and there really is a lot of conflicting information out there and while I generally feel I can pick my way through it, what is becoming increasingly apparent is that while autism is a THING, it is not a thing firmly wedged in a box. Yes there is the triad of 'impairments ' but there is a range within those too. So you have multiple spectrums within the spectrum. So this post is a bit of a collection  of the information we have gathered along the way as well as a record of how we're feeling and coping too. We don't tell lots of people about his autism, mainly because the people who matter already know, but also because of the lack of understanding we have already encountered. Many people hear 'autism' and assume the person will be non-verbal, unable to make eye contact and hand-flap all day (...

He is still the same...

This week my lovely boy was diagnosed with autism. Or is that diagnosed autistic? See how new I am to this? I feel like my head is swimming so I'm writing in the hope that writing, as it usually does, helps give me the clarity and steadiness to my thoughts that I need. Because if I'm absolutely honest, I feel a bit blindsided . It doesn't matter that in fact we have wondered over the years if he might be 'on the spectrum', we have even gone as far at times to say that yes, he has autistic traits but he IS autistic? Turns out it's more surprising than expected. We went to his paediatric review with no other expectations than to get the incontinence nurse chased up and perhaps the suggestion of some more blood tests to investigate the reason he presents with sensory processing difficulties, speech and language disorders and learning difficulties. The Dr greeted us with the observation that it seems that the only avenue left unexplored at the moment is the a...