Michelle Tant

This morning I met with the Occupational Therapist with Reuben. Amazingly the last time we saw her wad a year ago. It really is shocking that it has been that long but that is typical of the NHS really, lack of funding means that you get discharged from their service at the first opportunity. Perfect example, Reuben is being assessed for verbal development delay as basically I can't understand much of what he says never mind anyone else and he's been discharged several times. It's madness. A less determined person might have given up by now but I believe that Reuben needs help, more help than I'm equipped to give and that's not false modesty, that's accepting that someone else may have better insight into some of my sons needs than I do and I have to say that admittance does not come easily to me by any means. As a mother I believe that the vast majority of the time I know what's best for my children. I'm not an ego maniac, I'm a mummy! Sometim...

That's how this whole thing with Reuben feels right now. An eclectic mix of the two. He had an ENT appt yesterday (Ear, Nose & Throat) in Eastbourne hospital. He was seen by the consultant rather than the registrar due to his severe speech delay and after checking his ear drums again, he said he wants to schedule grommets surgery straight away, can we come in next week. He said that though Reuben can hear generally, its muffled, so not much clarity and this is likely to be having an effect on his speech development. The window of real opportunity for speech development is 0-5 years and he said that as his speech is so affected he doesn't want to delay at all. But here's the kicker. We are whizzing through some surgery stuff and heart issues are mentioned and I asked would it be ok... consultant looks at his notes... there's nothing there about Reubens heart. So he then says obviously he can't do the surgery without a go ahead from the consultant anes...